Friends, Giving: A Rock 'N' Roll Formal Fundraiser for Our Friend Kat Lewis feat. State and Madison w/ Molehill, Jess Godwin, & Tall Doug
$15 GA // $20 GA Ticket + An unreleased song from the upcoming STATE AND MADISON LP
If you've ever attended a music festival in the United States, chances are good that you've seen our friend, Kat, stage managing. Kat is always helping others, especially musicians, and right now she needs OUR help.
Here is the story: Kat was amazing at her job and she loved it. Unfortunately, (after much resistance), she finally had to give it up last year. Kat was diagnosed with an extremely rare degenerative bone disease called X-linked Hypophosphatemic Rickets (XLH, for short).
Kat was chosen to begin a gene-therapy trial for a wonder drug that just might allow her to lead a normal life in as little as two years! Here's the catch: each shot of Crysvita, the gene-editing drug, (received each month), costs $18k. She has a grant that covers the $18k but she's got another $3700 that she's responsible for, four times per year.
That being said, I know times are tough but anything you can offer helps. Let's make this happen for a very deserving person!
For further donations check out the GoFundMe made by Rachel Raymond of the Chicago band STILL + STORM: https://www.gofundme.com/genetherapy-trial-for-kat-lewis
& use the hashtag #LILFRSBRN.